The Cancer Care Beacon project focuses on three iterative pillars:
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WORK-PACKAGES:
WP1 Project management and communication (Lead: IEO)
WP1 deals with the project management (coordination, management, and organization) and communication aspects of the project. The project management aspect of the package aims to provide project management support to ensure the completion of the project’s deliverables on time.
WP2 Co-creating a sustainability model for governance & policy (Lead: IEO)
WP2 focuses on co-creating a sustainability model for governance and policy. We will apply an Agile methodology to gather information from each stakeholder in trying to understand their needs and wants. Specifically, patients will be asked regarding what type of information is important for them when attempting to make decisions in terms of screening, diagnosis, treatment, Quality of Life after treatment, and end-of-life care.
WP3 Mapping through empowering data: registries, clinical, -omics, and social determinants of health endpoints (Lead: SD)
The primary objective of WP3 is to map existing oncology data across EU member states and build Cancer Care Beacon Wiki providing comprehensive, up-to-date on cancer resources and care disparities to the community at large (patients and their families, oncologists, general practitioners, researchers, hospital administrators, and policymakers).
WP4 Implementation framework at the country and EU levels (Lead: EAPM)
Using the data described under WP3, we will develop a series of mechanisms that will assist our four groups of stakeholders (patients, providers, researchers, and policymakers) in searching for and finding the information of interest. We will create Use Cases describing how users will perform their searches on the Disparities Beacon website.
WP5 Data and project sustainability (Lead: SMUHC)
The primary objective of WP5 is to ensure the comprehensive, long-term sustainability of our project. Sustainability will be required at two levels, i.e., there should be regular integration of new data and a steady inflow of revenue beyond the stipulated funding period. We will establish partnerships with crucial cancer resource networks across Europe to integrate key sources of cancer information underlying our Cancer Care Beacon Wiki, which will be at the disposal of the lay public, healthcare providers, researchers, and policymakers.